Showing posts with label sleep apnea. Show all posts
Showing posts with label sleep apnea. Show all posts

Thursday, January 5, 2023

First Post of 2023! Happy New Year!


 And here we are! A new year, 2023! My 2022 ended on a pleasant note. 

For months I've been battling a deadly fatigue. In November, on a return trip from Ohio to visit my son and family, I fell asleep at the wheel. I woke before disaster struck, but it terrified me. I didn't understand why I was so tired. On my trip there, I was so sleepyI could hardly stay awake but thought it was my allergy pill. It wasn't.

I kept thinking the sleepiness problem resulted from a new medication my doctor gave me and so kept moving meds around trying to find a solution. Nothing worked. When I say I was sleepy, I was falling asleep on my feet on some days. More than once I've had to tell my son, Mike, that I had to go to bed immediately and left the room. Once in bed, I pass out. So, after falling asleep at the wheel, I contacted my doctor. 

As of December, I knew I'd be going back to Ohio for a week and had to get to the bottom of it. I contacted my sleep apnea doctor, and they told me my "numbers" showed that my mask was leaking badly and since they recalled it, I needed to come in and get fitted for a new sleep mask. 

I did. After three days, I was no longer getting sleepy and was more alert. A trip to my Primary care doctors days later and she restructured my medication doses to night. Within a week, I felt amazing and could do things I could not do for months because I couldn't stay awake. I could even write the narrative for my church's Christmas program and record it so they could play it in the program. I couldn't believe the change.

December 26, I drove to Columbus, Ohio to spend a week there with Sarah, my granddaughter. We had a wonderful time visiting thrift stores, eating out, going to a movie and visiting the Conservatory there. She is amazing and such fun. It was like old times, when she lived with me. I didn't get to spend as much time with the rest of the family because they were in Florida on a vacation. (It's a long story, but Sarah was supposed to be somewhere else and it fell through and couldn't be added to the trip at the last minute. I was "babysitting".) 

When I drove home this past Tuesday, I left at 5 a.m. and the weather was horrendous. Pitch black and pouring rain. Traffic was difficult, but since it wasn't rush hour, not too bad. My biggest problem occurred because the lines on the highway were so worn I couldn't see them in the storm. Terrifying since there are no street lights on highways anymore. However, I took my time driving 60 mph. When I got to Cincinnati, traffic had worsened, but the rain was getting better and the sky lighter. I pulled off for breakfast around 7:30, just past Cincy. 

My next stop was about 80 miles from home. I stopped at Loves Truck Stop for a break and to get a drink. After that, I didn't stop again until I parked in my garage. It was around noon. 

The rest of this week has been a slower pace. I've cleaned a little each day. While I was away, Mike came and babysat my cats. I have three, in case you didn't know. He did a good job of keeping things tidy. However, dust and cat hair still rule when I'm not here. So, I've been cleaning one room at a time and washing rugs and vacuuming floors. Tomorrow, the living room and my bedroom are the last I have to do. 

So, here we are. A new year. I pray it will be a good one, but I hold little hope for the world. I trust in God to see me through. May He watch over you as well. 





Monday, August 15, 2016

More of the Same

Things have been rather slow since I got back from Arkansas. My RA has been at near peak performance for months and I've grown a bit weary of it. A good day here and there is never enough relief. The barrage of storms that continue to roll across S. Indiana are a constant source of pain and the pain keeps me exhausted.

They are once again going to adjust my Cpap machine to try and reduce my apnea events. Obviously, I'm having too many. Is this why I'm tired? Who knows. I'm in constant pain, usually moderately severe. I sleep in pain and I wake in pain. You don't rest like that. So, I don't know if the adjustment will help.

And no, the Humira has not helped. They said six months to see a change. I'm 3 months in. Very little improvement, if any, is noted. In fact, I see signs of things worsening. I'm gaining weight because I can barely walk most days and have less strength in my legs and arms. Jars present Olympic challenges. Any work performed robs me of days of energy.

Reading is difficult because concentration is bad. Writing is difficult for the same reason and my hands hurt. Sitting hurts my back after long periods but walking hurts my hips. I actually feel better mentally when I can get some exercise if joint pain doesn't make it impossible to bear.

This has been a year of hell. I'm not usually a quitter but I've stopped fighting. It isn't going to get better. I don't want to think about what it is going to become.