A Light in the Dark

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I heard something today in a movie I was watching. The character said, "God won't put more on you that you can bear." It reminded me of the time after Jerry died. People were trying to give me comfort and for some reason they think a hug and that Biblical reference helps. 

First off, it doesn't help. Secondly, it isn't a Biblical reference. There is no place in the Bible that says God won't put more on you than you can bear. Really. It isn't there. Not anywhere at all does it say you'll be delivered from any burden you can't bear. And nowhere does it say your burdens won't kill you. 

No, it doesn't.

Really.

So why do people say "The Bible says God won't put more on you than you can bear"? I've thought about this a lot, as you can see. When I kept hearing it from all these people trying to help me, it suddenly dawned on me that I had no point of reference for that "verse". And if you asked anyone, they'd simply tell you it was "in the Bible". So I looked. And was confounded. It wasn't there. Why would people say it was there when it clearly was not? I came up with a couple of things.

1. Because they don't pay attention. 
2. They make their own interpretation. 
3. They repeat what they hear everyone else say without verifying the truth of it.

Honestly, #3 is probably the only reason but I'm being charitable. Here is what the apostle Paul actually says in 1 Corinthians 10:13 - "There hath no temptation taken you but such as is common to man: but God is faithful, who will not suffer you to be tempted above that ye are able: but will with the temptation also make a way to escape, that you may be able to bear it."

Now, you can argue the point all day long but that doesn't say God won't put more on you than you can bear. What it says is that when faced with temptation, you are given the ability, no matter how bad the temptation, to escape it. You can walk away from any temptation. It doesn't say it will be easy but it says he will make a way for you to escape the temptation, that you may be able to bear it. And out of that last clause comes a whole new scripture that means something entirely different.

I can buy the idea that you can't be tempted more than you can bear. That makes perfect sense to me. Every negative action you take, you make a conscious choice to either continue or turn away. It may be a hard decision to turn away, but you can do it. We are gifted with very strong wills. We might struggle with the decision to move away from temptation but we can do it.

But temptation has nothing to do with the burdens we bear in life, except the wrong decision creates some of the burdens we bear. And for every burden you create, you will bear it. Some of those burdens just might be more than you can carry. They might even kill you. 

Other verses clarify this burden bearing thing even further. Galatians 6:4-5 says: "But let every man prove his own work, and then shall he have rejoicing in himself alone and not in another. For every man shall bear his own burden."

See that? Doesn't say anyone will bear them for you nor does it say they won't be more than you can bear. And if you read further, you get a very interesting connection. "Be not deceived; God is not mocked: for whatsoever a man soweth, that shall he also reap." You create your own burdens and you get to carry them. That's the implication of "reap". You sow tiny seeds. You reap bountiful harvests. Hosea 8:7 says, "For they have sown the wind, and they shall reap the whirlwind." You are going harvest a big burden.

Galatians 6;2 says, "Bear ye one another’s burdens, and so fulfil the law of Christ." So, not only do you have to carry your own junk, but you have to carry other people's! Again, it doesn't say that the burdens won't be more than you can handle. Not anywhere.

So, don't assume God is going to remove burdens. I can tell you from personal experience that he does not. Jesus would tell you the same thing. "Father, if thou be willing remove this cup from me: nevertheless, not my will but thine be done." Luke 22:42 They crucified him. You think you have problems?

Sometimes people refer to another quote by Jesus. "Come to Me, all who are weary and heavy-laden, and I will give you rest. Take My yoke upon you and learn from Me, for I am gentle and humble in heart, and you will find rest for your souls. For My yoke is easy and My burden is light.” Matt. 11:28-30. 

Please note that he did not say he'd take your burden from you. A yoke is something used to assist in carrying heavy loads. It doesn't change the load. It just shifts the weight. He said he'd give you "rest for you soul". You're still carrying the same burdens, and it may be easier at times, but you can sit down and rest under the shelter of his arms.

Now, if you asked me how to do that, I can't tell you. Really. I have no idea. I'm being truthful here. See, I know God is real. I know He loves me. I know He has provided for me. But the burdens I carry have nearly crushed me and sometimes I get very confused by that. I ask God, often, "Are you trying to kill me? Do you want me dead? Cause I'm dying and if you do, there's easier ways." Really, I've had this conversation with God. Really.

But the burdens are still there. I see no point and no purpose to Jerry dying. I exercised and stayed fit for years and I'm nearly crippled some days and in agony of pain I can't stop. I carry other burdens that I see no good in. I get angry because I've carried them so far and so long and I'm so tired.

Sometimes there are good days. The road is sunny and level. I rest but then I reach a mountain and the weight become so heavy. Sometimes life is all uphill.  

Don't ask me how to fix the burdens. I don't know. I can say for certain that there are people placed in my path that lift my spirits, pray for me, send me emails, call me, taken me to lunch, given me a card, a gift, a hug, or a smile. The load is still heavy but I was able to rest in the light they shed. 

So, the next time you want to comfort someone suffering beneath a heavy load, don't utter that stupid lie. The burdens they carry may very well be too heavy for them. They may be dying beneath the load. We are to attempt to save the lives of those crushed beneath loads too heavy for them. You may be the person who carries the light in the darkness they travel. Sometimes light is all you need for the journey.

It's a Ledge But It Isn't Life

As I leaned against the bathroom wall this morning I don't think I've ever been so close to wishing I was dead. I don't ever put that into words anymore. I think we've all done it at some point in our lives, when we were young and didn't really see the value of life. We were stupid and just said what popped into our heads. But I stopped saying things like that a long time ago. Words have power. 

Today, I'm close. The pain is in every joint. Nothing is helping. I spent the next several hours lying in a chair trying to sleep. 

I don't know how I'm going to get through the next five days like this. I don't know how I'm going to get through the next five hours. I've tried to figure out what I did to deserve this kind of torture, because it is torture. It feels like your joints are being cooked from the inside, slowly. The cramps in my legs from the knee pain make lying down uncomfortable. And my neck, while it may look ok, is not. I can't sit in certain positions, like reading or crochet angles, so I'm constantly shifting for something that minimizes the pain and doesn't make my neck and shoulder go numb. I'm not reading or crocheting these days for more than minutes. That spreading numbness is very scary.


I've looked for all kinds of answers and I'm pretty tired of the effort. I really don't want to do it anymore. I've finally realized that there are no solutions. None.

What is even more frustrating is that I can't seem to get anyone to understand that there is nothing anyone can do to fix it. It is like talking to three year olds. They either think, because I'm up walking around that I don't have a problem or because I managed to get to work, I must be o.k. People seem to refuse to believe there isn't some magic potion to make you better. There isn't.

And I have to say when you are in pain, people tend to say the stupidest things, as if you haven't frantically searched for something that will help you. Yes, I know they mean well. Yes, I understand they are upset by my state. Yes, I do appreciate it. But to spare me any further pain of dwelling on the hopelessness of it please educate yourself on my disease. Google the hundreds of pages I've Googled. 

"Do you need to go to the hospital?" No.I can't afford it and they can't do anything anyway.

"Did you take something?" No because there is nothing else I can take. I am allergic to an ingredient they put in the medicines to treat the disease. That allergy will kill me if I take it.

"Can you call your doctor?" No. My doctor knows my condition and nothing has changed.

"What about .....?"  NO!

"Or .....?" NO!

"Maybe if you ...." NO, NO, NO!

Stop it already. 

Believe me when I tell you that in the middle of the worst pain, I've sat sobbing over Google looking for something that will fix it. I've read medical reports and articles, I've talked to other people with the disease. I've researched alternative medical sites. I've read junk science. It can't be fixed. There is nothing I can take. There is nothing I can do. There is nothing you can do. There is no place to go, no one to see, and no one to talk to about it. You can't help me. I can't help me. The doctor can't help me. 

So, I leaned against the wall, waiting for the water to get hot and said, "This isn't living. This is living death. And I don't want to do it."

I was surprised I meant it. 

Out of the Ashes

Nearly every mother faces an identity crisis when our children grow up. And believe me, it is every bit as profound as that faced by our children when they cross the threshold to maturity. I'm not sure it isn't worse.

My friend, Chris D. made a poignant post in her blog, A Parent Spectrum Disorder, today. She still has adolescents at home but the day is fast approaching when she will have an empty nest. As I wrote my comment to her, I realized it was not just meant for Chris. There was something in it that tickled my ear and I was forced to think about it.

"It is the tragedy of motherhood that we sacrifice ourselves on that altar. We make ourselves literal burnt offerings. They grow up, leave, and we lie in the ashes, forgotten. We have to resurrect ourselves. And when your spouse dies, it is even worse because there is no one to help lend a hand if you need it. Grab your husband and make your life what it was before children. You can. You must. It ends too soon to waste time."

Resurrection. I'm not God. I have no real idea of how to do that. My children left home years ago. They've come back a couple of times since but that was different. I was dealing with adults who didn't want anything but a place to sleep, eat, and no rules. Once on their feet, they were gone again. At first it was hard to deal with adult children but after a few months things balanced out, rules were established in spite of them, and we were fine. It helps if your kids like you a little but that's another post. It is nice to know mine actually like me a lot.

I think even when they come back you fall back into the Mom role. You aren't yourself. You're the person you became when you heard that first cry. You're the healer, comforter, protector, accountant, landlord, chief cook and bottle washer. When they're born your world became this tiny place initially filled with dirty diapers and regular feedings. It expanded to regular bedtime battles and legos in the dark. From there it expanded to managing multiple schedules and shuttle duty, with binding up the bloodless wounds of teenagers. Then, rather sooner than you were prepared for, it was over. The house was empty, the laundry manageable, and you have no idea what to eat or how to cook for two. And when you looked, you didn't recognize yourself in the mirror.

My husband died and we had never really figured it out. How could we go back 30 years and be the fun loving duo who looked for exciting things to keep us interested in one another. We were looking but ill health and death interrupted us and before we truly got a chance to find that place again, he was gone, forever altering my perception and my world. 

Resurrection is no different for me than for any other mother. If anything, it is harder. Not only do we mold our personality around children, before them, if you were fortunate enough to have a spouse, we molded it around a spouse. The "two become one" is no joke. In a good relationship, you do become a single unit. Children further cement this and your identity shifts farther away from who you were single. 

So here we are, sans children. And we look in that mirror and we see lines that weren't there, shoulders that used to be straighter, necks that were once slender, too many chins, bags under eyes that once sparkled in laughter and now... well, sometimes they glitter in anger. We look...and a total stranger stares back.

I thought, once past the worst of the grief, I'd find ways to put the past behind me. I just knew... was positive... if I survived it, I'd be me again. I didn't realize that it would be impossible. Today, when I read my own comment to Chris the truth dawned on me. That girl, the one who laughed so easily, found excitement in everything she did, and was so creative... she was long gone. I am suddenly faced with the realization that I have to recreate myself. I have to become someone else. 

Who am I? What am I supposed to do now? For five years I've tried to figure this out. At first I thought I knew but with half of me missing, nothing fit. I no longer had an identity. The stranger in my mirror is truly someone I do not know. 

I forced myself to find ways to become involved in things I loved. I started crocheting again. I started sewing but neck problems put a crimp in that. I became a local Municipal Liaison for National Novel Writing Month and I started a local writing group and I connected with dozens of people online who loved writing. I began to write more. There was a sense that I was moving toward something. I had no idea what.

The last three years I've been too sick to care much who I am. Each day has been pretty much a struggle to get up, put in 8 hours and come home. The sense of forward motion stopped dead. There is still this woman who stares back at me from the mirror. Her eyes still glitter. I realize she's fairly angry that life is throwing painful things at her. She still lies in ashes.

So, although I can't prevent the slings and arrows of life, I must keep trying to find who I am. Stopping now is unacceptable because ... well, in truth, that is who I am. And maybe, one day, I'll wake up and look in that mirror find that, like the Phoenix, I have emerge from the ashes a completely new person.

Gloom, Despair, & Agony

Well, it isn't that bad. Really. It is Wednesday and the weather is lousy. I woke to gray cloud cover, everything was wet and cold. I hurt. Not many places but those places hurt a lot. As I sat on the edge of the bed I considered my alternatives. Pain or medicines that could give me cancers or worse. When it hurts that bad it is a hard choice.

Still, I managed to drag myself from the warm bed and get Sarah up for school. I would have stayed there for another 20 minutes but I forgot Sarah. She was not happy either. She wouldn't go to bed last night and she chattered for a good 20 minutes after lights were out.

We had our breakfast and by then, some of my pain was manageable. I took two generic 8 hour tylenol. The alternatives faded from my mind as the morning progressed and pain subsided to tolerable levels. But I am so tired and no medicine will fix that.

I'm concerned about the endless exhaustion. Epstein Barr, which I had for about 6 months last year, is suspect in Chronic Fatigue Syndrome. I've had fatigue before but not on the scale I seem to have it now. I can't get enough rest. I fall asleep easily but do not sleep long and when I get up I'm exhausted. My next move will be a sleep study. I need to know what is happening.

I had the MRI yesterday and already folks are asking... namely my children. I understand and appreciate their concern. Nice to feel cared for now and then. Still, no result until they send me a nice letter telling me or the doctor calls me. I have to say the numbness, while still happening, seems to be lessing each day. There's very little pain there now, thankfully. I still get twinges at certain motions and angles. I really believe the worst of it was caused by things in my neck swelling and compressing a nerve. I could be wrong.

My RA doctor will not believe me. I see her tomorrow. Her nurse informed me that the doctor thought I had an upper respiratory infection that caused the swollen glands, neck pain, and pond scum from my nose, despite not a single symptom - no sneezing, coughing, or breathing problems associated with such infections. She never checked my nose. Never commented on my neck pain. How would she even know? She suggested my Primary look into that.

However, since all symptoms, except the neck pain and numbness disappeared within three days of stopping the methotrexate, why would I bother? I saw my primary days after I stopped it and she found no sign of an infection but ordered the MRI to see if there was a herniated disk causing the neck problem.

So, there we have it. Wednesday weather is sucky. My life is exhausting. I very upset because as a result of all this, my writing has come to a screeching halt. I have ideas floating in my head but I can't seem to focus long enough to get them down. I hate it, hate it, hate it.

How is your week progressing? Anything exciting? I could use some excitement... well the good kind, not the usual.

What Are You Doing Here?

I got up this morning with reluctance. I so wanted to sleep in for a bit. I was just so tired. But I dragged myself to work. 

When I arrived they stared at me and asked why I was there. I stared back. Today is my monthly furlough day. I wasn't supposed to be there. After my initial confusion and annoyance, I came home. The damage was done. 

I've been sitting in the chair all morning, first reading my devotional, praying, and then just reading stuff online, news, blogs, ads, email. I don't think the devotion time was a waste nor the prayer but the rest of it was a wash. I could have been doing the bank reconciliation or taxes. So, I am frustrated with myself because I would have felt better had I been able to get that extra hour of rest and I might have been able to actually accomplish something. 

I think I'll take charge and go do the bank stuff now. I hate doing it. I'm never happy with the results. Taxes won't be much better.

I think I will also attempt to get some writing done. Maybe that will give me some sense of accomplishment.