I Can't Complain... well, maybe just a little.

I've been pretty negative lately and I don't like it much. I suppose that is the nature of pain. It brings out all the worst in us. I apologize to anyone I have depressed and stressed and annoyed by my persistant whine tasting sessions. Really, I do.

I don't know if anyone who is not experiencing pain can really grasp what it means to have unrelieved pain for which there seems to be no pill or recourse. I was diagnosed with Rheumatoid arthiritis about 4 years ago. Actually, the doctor I saw was wishy-washy about it but my primary care doctor had already done the blood test and it was positive. So, I changed specialist and the next one, also relucant, did confirm the original test results... with a caveat that other diseases can mimic RA. I already knew this from my research. (Side effects of a history major are propensensity for research.)

She further concluded that while I do have a mild case of RA, she suspect that the pain I am experiencing is related to fibromyalgia, an elusive disorder that appears for no known reason, strikes at random in the body to cause inflamatory pain. No cause, no cure. Until a few years ago, this particular disorder was considered imaginary. Sufferers appear perfectly healthy on the outside, if you exclude the strained smiles, wrinkled foreheads, tense postures and stiff movements.

Really, if I want to keep it hidden, I can but once out of sight, it is normal to breakdown and cry with pain or just suffer in silence. For example, my right calf muscle frequently feels like a torn muscle that makes it extremely painful to walk. I limp. Someone ask, "What's wrong with your leg?" I reply, "Nothing, just hurts today." They walk on and have no idea that I would rather be crawling down the hall than put my weight on that leg.

The pain in my neck and shoulders is continous, with brief lulls in the severity. I suffer from TMJ and migraine headaches, both of which are symptoms of the disorder. I have had TMJ since I was in my twenties and migrains began in my 30's. Muscle pain in my late 40's. It is a progressive disorder. I do not sleep well and disrupted sleep is thought to be a common problem. Too little sleep and pain escalates which in turn causes you not to sleep.

I did aerobics for a couple of decades and road a stationary bike. I was very active and weighed 70 pounds less. I could move furniture alone. I painted my home, hung dry-wall, replaced floors, toilets, sinks, refinished old furniture, sewed, crocheted, wrote, and took care of my family while I attended college full time in my 30's. Once I graduated, I went to work. I work 40 hours a week. I can no longer do any strenous work for very long and I can't think. And that is the worst side effect of all.

They say exercise is one of the best defenses of the problem but you hurt so bad and are so tired it is a herculean feat to accomplish it. A treadmill puts me in tears after 30 minutes. And I so miss exercising but I cringe at the thought of an aerobics routine.

Now, what to do. There is no known cause. There is no known cure because you can't cure something you can't define. There are medicines to take. They usually don't work. I am taking an RA medicine now and an antiinflamatory. I take Previcid to combat the stomach damage caused by the anti-inflamatory. I am also insulin resistant and have high blood pressure. I take meds for both those. I take a muscle relaxant to help me sleep but it causes severe dry mouth and I can't take if for more than a few days at a time. I take a medicine for migraines when I have them and another medicine that helps me sleep. That medicine has limited effects after a week. There are some new experimental medicine. I won't take them. The RA med has potentially lethal side effects and some pretty scary non-lethal ones, one of which is blindness. I am sick enough already and don't need any more symptoms.

I still have pain. I still don't sleep. I probably should quit work but I am the primary support for my family so, that is not going to happen. Well, not unless God gives me a few million to retire on. So far, that hasn't happened. I'm hopeful but not optimistic.

So there you have what all the whine is about. It goes down better with cheese but my humor is not up to speed at the moment. Still, for everyone who has dropped a word of sympathy and concern, it is so very appreciated. Sometimes, just hearing someone say something nice is the best medicine there is.

I promise to try and be more upbeat. The weather is changing so maybe some sunshine will cheer things up a bit. I am looking forward to sitting in the sun and just relaxing for a few hours on the weekends. I do know how to relax but finding a comfortable position is the problem.

Tomorrow is one day shy of the week-end. We have rain at the moment. This means in Indiana that spring is at the door. I hope you all have a lovely weekend wherever you are.

My final words: God is good. All the time. In the good, in the bad, in the happy and in the sad. And in the midst of great suffering, he is closer that your skin. You just have to open your eyes.

Blessings and good wishes to you all.