Wednesday, May 11, 2016

On a Clear Day

Can you imagine waking up and not feeling any pain at all? Can you imagine being able to have a clear thought, to not feel as if your brain was stuffed with cotton wool all the time?

I can't. I do not remember what it is like to wake up and not feel pain all over. I can't remember being able to walk without my feet hurting or my neck in excruciating pain. I can't remember what it feels like to be able to think clearly.

I don't remember what any of that feels like. I've had days of moderate pain, but no days when I was totally pain-free. For over 7 years.

Today marks one week since I received the Humira shot for my rheumatoid arthritis. The doctor told me it could take up to two months to see any effects. Over the last week, we've had day after day of rain and thunderstorms. My usual reaction to this kind of weather is days of severe pain in every joint, even my skin hurts. Low-pressure systems are a physical hell for me.

So, how has this week gone? For the first four days, after the shot, I woke up to no pain at all. It felt as if my brain had some kind of jolt and everything felt sharp and crisp. From the fifth day through today I've had some minor pain in a couple of small joints. I've had a couple of ocular migraines, at least I think that is what they were. 

Today, I have no pain other than some minor pain in my hand and we had a storm come through. The lack of brain fog alone was a shock. 

I don't know if this is all a result of the shot or if I'm in a short remission due to the steroid I had to go on a week before the shot. That's never happened before and I've taken the steroid at least 4 times in the last year and a half. Generally, the steroid only works during the first three days until I begin to taper off and then the pain returns.

Whatever it is, I'm thankful for it. So, I'll be watching things with interest to see how it goes. I'm terrified of this medicine but I have very few choices at this point. 


  1. Sounds like you may have found something that actually helps. I hope so.

  2. Dixie.... I'll keep my fingers crossed for you. I know it's been getting increasingly difficult, I know that all drugs have side effects, but boy oh boy, if this drug can get you pain free and clear-headed, that would be wonderful.

    1. Thanks ladies. And you're right Laurie! It would be wonderful. I'm hopeful but it is hard not to be skeptical.